Last night Mia and I stopped at the store to grab a few things before heading home. We didn't need much, so we just walked by the carts, and she looked at me like 'seriously, you're going to make me walk?' Too big for the seat in the front of the cart, she enjoys sitting in the big part and sprawling out.
We were walking along minding our own business when we walked by a man and his son, and when she noticed that their cart was empty, she tried to climb in. When I pulled her away, she started to laugh!
I giggled at the site, I couldn't help myself.
We then walked by a lady who's cart was also empty. At this point, I could hear Mia starting to giggle under her breath, and I anticipated her next move. She burst out lauging as she lunged forward to grab the cart, and proceeded to try to climb into it. The lady looked and laughed too, as she apparently knew that Mia was playing a game. As I tried to pull her away, she laughed harder, which made me laugh too.
She did this a few more times with a few more random people, and apparently thought it was the best shopping game ever because she laughed the whole way! I laughed so hard that it made me cry. We must have been a site in the store, as Mia grabbed a hold of peoples carts and tried to claim them as her own.
One of the many things I've learned is to enjoy the small things. Mia has gone from the kid who would scream in the store because we walked BY the exit instead of going OUT it, to the kid who finds ways to make this not so fun task enjoyable. It's a small step in progress to most people, but it's a HUGE step in our world!
Wednesday, February 22, 2012
TSC Awareness&Fundraising 2012~ 2-21-12
Amelia and I are starting our efforts early this year. The annual Step Forward To Cure TSC Walk will be held in Massachusetts this year, and we would like to take at least $1000.00 with us to help the cause. The tentative date is September 15, 2012.
Mia and I are both affected by TSC, and it is important to us both. A cure for TSC could mean a future cure for CANCER, AUTISM, and EPILEPSY.
That's right, TSC research is a gateway into research for many cures! Please help Mia and I raise awareness and funds for this very important cause!
We have several ways that you can help. If you would like to make a secure donation, you can click our Chip-In box in the right hand corner of this screen. Even a $1 donation will help us along our way. http://tscasdgirlies.chipin.com/step-forward-to-cure-tsc-2012
If you love Scentsy, we have a fundraising link on the front of my web page. 20% of your purchase will go towards our goal of raising $1000.00! https://warriormom.scentsy.us/
If you would like to walk with us and become a part of our team, I have walker donation sheets that you can take along with you to work, social outings, etc. Fliers, informational sheets, and more, will be provided by me!
Any and all help will be greatly appreciated! Thanks for taking the time to read this, and check back for future events that we will be creating! :)
Ashley
Mia and I are both affected by TSC, and it is important to us both. A cure for TSC could mean a future cure for CANCER, AUTISM, and EPILEPSY.
That's right, TSC research is a gateway into research for many cures! Please help Mia and I raise awareness and funds for this very important cause!
We have several ways that you can help. If you would like to make a secure donation, you can click our Chip-In box in the right hand corner of this screen. Even a $1 donation will help us along our way. http://tscasdgirlies.chipin.com/step-forward-to-cure-tsc-2012
If you love Scentsy, we have a fundraising link on the front of my web page. 20% of your purchase will go towards our goal of raising $1000.00! https://warriormom.scentsy.us/
If you would like to walk with us and become a part of our team, I have walker donation sheets that you can take along with you to work, social outings, etc. Fliers, informational sheets, and more, will be provided by me!
Any and all help will be greatly appreciated! Thanks for taking the time to read this, and check back for future events that we will be creating! :)
Ashley
Monday, February 6, 2012
Tuberous Sclerosis (TSC). Heard of it? Read On To Find Out More
When my daughter was about six months old, she had a catscan done because her doctor though her head was growing too large too fast. We found nothing to indicate any problem with the size of her head. What we did find though, took me completely by surprise.
There, on the images from the scan, were several glowing white spots on her brain. The doctor indicated that these spots were called Cortical Tubers, and that this meant it was likely that my daughter had a genetic condition called Tuberous Sclerosis (TSC).
She sent us home with minimal information. I was armed with only a single sheet of literature. I began to investigate more online about TSC, and what to expect. Of course, when you look at things on the world wide web, what is highlighted most frequently? The negative.
What I learned though, helped me in the long run. Even after the painstaking hours I spent sobbing, hoping that my wonderful little girl would make it through this journey safely, the signs to be aware of will be with me always.
TSC is a condition that affects one of two genes. Either the TSC1 or the TSC2 genes are mutated, causing tumor growth in various parts of the body. The most commonly affected areas are the Brain, Heart, Kidneys, Lungs, Eyes, and Skin.
Some tumors can grow very large within the brain, heart, and other organs. These tumors require surgical removal. Some tumors are just there, and never grow or reduce in size.
Along with Tumor growth, a person with TSC can also develop seizures, and have cognitive developmental delays, such as Autism. There is a link between Autism and TSC, though scientists don't fully understand the relationship of the two.
Mia, unfortunately, has been affected by all of these. She started having infantile spasms at nine months old. At about a year old, the sure signs of Autism started to present themselves. She has epilepsy, but luckily at this point her seizures are now well controlled. She has tumors on her kidneys, small ones that will come and go in her heart, and one behind her left eye. She is non verbal, and is delayed in most every area of development.
Currently, there is no cure for TSC. The only assurance that a patient with TSC has is monitoring. The brain needs an image taken every two years. The heart, kidneys, lungs, etc, every year. Usually, if epilepsy is present in a patient, at least two checkups with a Neurologist are needed a year. Developmental therapies and early intervention are the only treatments for the developmental side of TSC, if they are present.
TSC is a hard disorer for most, and more people should be made aware of it. I hope that when you leave this post, you will have a better understanding of what TSC is. And don't be afraid to ask more questions, or visit the tsalliance.org for more info!
There, on the images from the scan, were several glowing white spots on her brain. The doctor indicated that these spots were called Cortical Tubers, and that this meant it was likely that my daughter had a genetic condition called Tuberous Sclerosis (TSC).
She sent us home with minimal information. I was armed with only a single sheet of literature. I began to investigate more online about TSC, and what to expect. Of course, when you look at things on the world wide web, what is highlighted most frequently? The negative.
What I learned though, helped me in the long run. Even after the painstaking hours I spent sobbing, hoping that my wonderful little girl would make it through this journey safely, the signs to be aware of will be with me always.
TSC is a condition that affects one of two genes. Either the TSC1 or the TSC2 genes are mutated, causing tumor growth in various parts of the body. The most commonly affected areas are the Brain, Heart, Kidneys, Lungs, Eyes, and Skin.
Some tumors can grow very large within the brain, heart, and other organs. These tumors require surgical removal. Some tumors are just there, and never grow or reduce in size.
Along with Tumor growth, a person with TSC can also develop seizures, and have cognitive developmental delays, such as Autism. There is a link between Autism and TSC, though scientists don't fully understand the relationship of the two.
Mia, unfortunately, has been affected by all of these. She started having infantile spasms at nine months old. At about a year old, the sure signs of Autism started to present themselves. She has epilepsy, but luckily at this point her seizures are now well controlled. She has tumors on her kidneys, small ones that will come and go in her heart, and one behind her left eye. She is non verbal, and is delayed in most every area of development.
Currently, there is no cure for TSC. The only assurance that a patient with TSC has is monitoring. The brain needs an image taken every two years. The heart, kidneys, lungs, etc, every year. Usually, if epilepsy is present in a patient, at least two checkups with a Neurologist are needed a year. Developmental therapies and early intervention are the only treatments for the developmental side of TSC, if they are present.
TSC is a hard disorer for most, and more people should be made aware of it. I hope that when you leave this post, you will have a better understanding of what TSC is. And don't be afraid to ask more questions, or visit the tsalliance.org for more info!
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